CEO for Epilepsy Scotland (Permanent & Interim)
- Published:
Job description...
- Location: 48 Govan Road, Glasgow, G51 1JL | Hybrid - The Chief Executive will be expected to maintain a regular on-site presence to support visibility, collaboration, and organisational culture.
- Salary: £70,000 - £75,000 DOE
- Status: Permanent or Interim Contract
- Hours: This is a full-time position (35 hours per week). Flexibility is essential, including some evening and weekend working in line with the demands of the role.
- Reports to: Board of Directors / Chair
- Closing Date: Monday 14 September 2026 at 12 noon. **Please also state on your application if it is the permanent or interim post you are applying for***.
- Interview Dates - Stage 1: Monday 21 September 2026 (this stage will include a presentation). Stage 2: Monday 28 September 2026. Interviews will take place in person at Epilepsy Scotland, 48 Govan Road, Kinning Park, Glasgow, G51 1JL.
Welcome from the Chair
Thank you for your interest in the role of Chief Executive at Epilepsy Scotland.
Epilepsy Scotland is the country’s largest third sector organisation dedicated to supporting and advocating for people living with epilepsy. After seventeen successful years of leadership, our current CEO is stepping down to explore new opportunities, creating an important moment of transition for the organisation.
This is a unique opportunity for an ambitious and values-driven leader to build on our strengths, shape our future direction, and ensure we continue to deliver meaningful impact for the people and communities we serve.
We are looking for someone who brings strategic vision, fresh thinking, and confident leadership. You will be comfortable leading organisational change and restructuring, while recognising the importance of maintaining high-quality service delivery throughout periods of transformation.
As a Board, we are keen to hear from exceptional leaders who are interested in either a permanent appointment or a fixed-term contract focused on leading organisational change. Whether you are seeking the opportunity to provide long-term strategic leadership or to guide the organisation through a period of transformation before handing over to a permanent successor, you will play a pivotal role in shaping Epilepsy Scotland’s next chapter.
Why this role matters
People with epilepsy have the right to live without stigma, to access the support they need, and to feel fully included in society. For many, epilepsy shapes confidence, opportunities, family life, and the support they receive at home, at work, and in their communities.
As Chief Executive, you will play a vital role in ensuring people are heard, supported, and empowered to live the life they choose. If appointed on a permanent basis, you will provide the long-term vision and leadership to deliver our strategic ambitions and secure a sustainable future for the organisation. If appointed on a fixed-term contract, you will lead a period of organisational change, helping to strengthen our structure, diversify income, enhance resilience, and position Epilepsy Scotland for its next phase of growth and impact.
Whichever appointment is made, your leadership will leave a lasting legacy for the organisation, its staff, volunteers, partners, and—most importantly—the people and families who rely on our services.
If you believe you have the skills, experience, and passion to lead Epilepsy Scotland into its next chapter, we would be delighted to hear from you.
Please contact our search partner, AWS Executive, for further information.
With best wishes,
Dr Susan Duncan, Chair
About Epilepsy Scotland
Epilepsy Scotland is a registered Scottish charity that wants to make sure the needs of people with epilepsy and associated conditions are met. This is why we campaign for improved healthcare, better information provision and an end to stigma.
Our mission
Epilepsy Scotland works with people living with epilepsy and associated conditions to ensure their voice is heard.
Our vision
+ We believe people living with epilepsy and associated conditions have a right to:
+ be free from stigma and discrimination.
+ have access to high quality medical, social, educational, support and information services.
+ be valued and included in society.
+ determine their own way of life.
Our work
+ We fight discrimination and stigma experienced by people with epilepsy and associated conditions.
+ We influence public policy to achieve best practice for people living with epilepsy and associated conditions.
+ We work to ensure appropriate services and support are available.
+ We sustain an effective, supportive, and financially secure organisation.
In Scotland approximately 80,000 people have epilepsy. Children and older people are most at risk of developing this common serious neurological condition, but anyone can develop epilepsy at any time and around eight people in Scotland do every day. There is also a wider community of families, carers, friends etc., living with epilepsy.
This role profile has been prepared to clearly set out the standards and responsibilities that are associated with being a Trustee and director on the Board of Epilepsy Action Scotland (Epilepsy Scotland). It should be read in conjunction with our Articles of Association.
The role profile reflects the principles of good governance. This takes account of (and is compliant with) the expectations of the Financial Reporting Council (FRC) Regulator’s Standards of Governance and Financial Management for Epilepsy Scotland and relevant guidance produced by the Office of the Scottish Charity Regulator (OSCR).
Please refer to the Job Pack for further information.
This position is readvertised with a revised job specification. Previous applicants need not reapply.
We encourage you to read the Job Pack thoroughly, consider the information provided and ensure that your experience, skills and motivations closely align with the requirements of the role before arranging a confidential discussion or submitting an application.
If, having reviewed the information, you would like to arrange a confidential conversation about the opportunity, please contact Alan Surgeon or Donna McKay at AWS Executive. Discussions can be held via Microsoft Teams or Zoom.
☎️ 0131 341 5533
APPLICATION GUIDANCE
As you prepare your application, we encourage you to reflect on how your experience and leadership will help deliver the outcomes that matter most to the organisation. In particular, please consider how you would contribute to ensuring that:
• People trust the organisation and feel supported.
• Help staff understand the direction of the organisation and feel part of its future.
• Services are valued and make a meaningful difference.
• Finances are stable and sustainable.
• The organisation has a strong, influential voice that is impossible to ignore.
Candidates who wish to be considered should submit:
• A current CV.
• A covering letter (in Microsoft Word format) outlining your suitability for the role and demonstrating how your experience aligns with the requirements of the position.
Please also state on your application if it is the permanent or interim post you are applying for.
Applications should be submitted via the Apply box, which is below the section with the Intro video 👇🏻
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